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Patient and public involvement

Patient and public involvement (PPI) in research is an important part of all OCTRU trials. PPI enables high quality trials to be developed, grow and blossom. OCTRU trials, and the researchers running them, actively involve PPI in their research. Most of our trials have PPI members on the project advisory / steering group and/or PPI members as co-applicants on research projects and grants.

The National Institute of Health Research has produced some information on the different roles that are related to research. Click here to visit their webpages to find out more about people in research.

INVOLVE is an organisation funded by the National Institute for Health Research (NIHR) to support public involvement in NHS, public health and social care research. 

INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.

Examples of public involvement include:

  • as joint grant holders or co-applicants on a research project
  • involvement in identifying research priorities
  • as members of a project advisory or steering group
  • commenting on and developing patient information leaflets or other research  materials
  • undertaking interviews with research participants
  • user and/or carer researchers carrying out the research.

 The ‘with’ and ‘by’ philosophy is what is strongly embraced within OCTRU. 

 More information

For all:

The INVOLVE website is an excellent source of knowledge, learning and information about patient and public involvement in research.

FOR MEMBERS OF THE PUBLIC:

We are always interested to hear from members of the public who would like to get involved as PPI members on our OCTRU trials.  Our website lists the areas of healthcare in which we are conducting trials.  If you would like to involved please contact us via email on octrutrialshub@ndorms.ox.ac.uk or by telephoning 01865 223469 for more information.

For researchers:

The NIHR provides a number of resources for researchers to engage with the PPI community. These include:

  For researchers in England, the NIHR Research Design Service offers advice and support on developing PPI in NIHR funding applications. 

  Advertising opportunities for members of the public to get involved in your project on People in Research.

  The Research Design Services’ PPI Handbook for Researchers.

  Developing and assess your plans against a step-by-step series of briefing notes for researchers from INVOLVE.

  Searching a library of video clips about patient and public involvement in research  that have been collected and analysed by healthtalk.org.


  Using an online involvement cost calculator to plan your PPI budget


  Resources from the ‘make it clear’ campaign can help you write a good quality plain English summary. This is a requirement of NIHR funding.

  Consulting invoDIRECT, a map of 80+ organisations, groups and networks that support PPI in research
- to find out what is going on in your local area.